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Casa Hunter Associação Brasileira Dos Portadores Da Doença De Hunter E Outras Doenças Raras

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Areas of expertise & Fields of activity:	Economic and Social: Disabled Persons Human Rights Minority Rights Social Development: Disabled persons Social policy
Geographic scope:	National
Country of activity:	Brazil
Millennium Development Goals:	Combat HIV/AIDS, malaria and other diseases
Mission statement:	Our mission is to relieve sickness and distress amongst families affected by rare Diseases worldwide. We will achieve this by sharing expertise, knowledge and skills across our network, providing mutual support between patient groups, improving information and awareness of rare diseases and stimulating research. We work for the implementation of public policies for people with rare diseases Our network enables connections, bringing together people who can make a difference for this group of devastating rare conditions.
Year established:	2013
Year of registration:	2013
Organizational structure:	General Assembly Executive Board Fiscal Council.
Number and type of members:	General Assembly composed by all the associations Executive Board composed of president, administrative director and medical director. Fiscal Council composed by 3 members.
Funding structure:	Membership fees or dues Fundraising campaigns Donations and grants from domestic sources

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