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CLAN (Caring & Living as Neighbours) Incorporated

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Areas of expertise & Fields of activity:	Economic and Social: Children Disabled Persons Extreme poverty Humanitarian Affairs Sustainable Development Financing for Development: Addressing systemic issues Social Development: Disabled persons Poverty Sustainable Development: Health Poverty
Geographic scope:	International
Country of activity:	Australia Philippines Pakistan Viet Nam Indonesia
Millennium Development Goals:	Eradicate extreme poverty and hunger Reduce child mortality Develop global partnership for development
Mission statement:	CLAN is an Australian-based, non-governmental, charitable organisation (approved by AusAID for Overseas Aid Gift Deductibility Status), dedicated to the dream that all children living with chronic medical conditions in resource-poor countries of the world will enjoy a quality of life on par with that of their neighbours in wealthier countries. Whilst the United Nations' Convention on the Rights of the Child (articles 4, 6, 23 and 24) clearly states that all children with special health requirements have a right to the care needed to enable them to live the healthiest and most fulfilling life possible, the sad reality is that in resource-poor countries any child with any chronic medical condition (that is, a health condition that lasts more than 6 months) is immediately susceptible to entirely preventable disability and death. Founded in 2004, CLAN's work began by helping children living with Congenital Adrenal Hyperplasia (CAH) in Vietnam. This was in response to stories in Australian and American CAH Support Group newsletters that outlined the shocking global inequity that existed for children with CAH. Whilst a child in Australia with CAH could expect a high quality of life, children in Vietnam were dying and suffering unspeakable disability. Early successes in Vietnam led to requests for assistance from health professionals and families to help children with CAH in the Philippines (2005), Indonesia (2006) and later Pakistan (2007). In 2007 CLAN was also invited to help children with Diabetes in Vietnam, and in 2008 to help children with Autism in Vietnam. CLAN's efforts are based on 5 pillars, which provide a simple framework for action: Affordable access to medication Education (of individuals, families, communities, health professionals, policy makers and the international community) Optimisation of medical management (including primary prevention, screening, early diagnosis, secondary and tertiary prevention) Encouragement of family support networks Reducing financial burdens on families that result in poverty, helping people to become financially independent so that they can provide the necessary health care for their children longer-term. CLAN is committed to the principles of community development and comprehensive primary health care. We identify communities as groups of children (and their families) who have the same chronic medical conditions, and present to the same tertiary health centres for health care. Identification of these non-geographically based communities enables CLAN and other partners to work together with individuals and families living day-to-day with chronic medical conditions, to determine the most appropriate action for change. CLAN is committed to long-term, sustainable solutions, and believes the only way to achieve this is through collaborative, multi-sectoral efforts to effect change for the children. Partnerships with like-minded organisations and individuals are essential.
Year established:	2004
Year of registration:	2007
Organizational structure:	Incorporated organisation with the NSW Department of Fair Trading in Australia. Approved by AusAID for OAGDS status and the Australian Taxation Office for tax deductibility status.
Number and type of members:	Approximately 30 volunteers and 2 part-time employees
Affiliation with NGO networks:	Yes
Funding structure:	Donations and grants from domestic sources Foreign and international grants

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