| Affiliation with other organizations: |
VR Foundation has set up a network of research collaborators in 11 countries. |
| Publications: |
Over 30 publications since 2012 in peer-reviewed professional magazines, plus: - E-book 'Vitiligo: What's new, What's true' (2013-14); - Quarterly Reviews of the Latest in Vitiligo Research and Development. |
| Purpose of the organization: |
The VRF is harnessing the power of mass-collaboration and modern communication to combat vitiligo and other neglected skin diseases. |
| Activities relevant to the conference of States Parties to the convention on the Rights of Persons with Disabilities: |
The World Vitiligo Day campaign. Conceived by patients for patients, World Vitiligo Day is a truly global event that takes place each year on June 25th to increase awareness of vitiligo and raise funds for research, support and education. |
| Confirmation of the activities of the organization at the regional, national or international level: |
The World Vitiligo Day campaign. www.25June.org |
| A list of members of the governing body of the organization, and their countries of nationality: |
Founder and President: Dmitry Aksenov, MSc, MBA (Russia) Chair of the Board: Prof. Torello Lotti, MD (Italy) Directors: -Prof. Jana Hercogova, MD (Czech) - Prof. Mark Lebwohl, MD (USA) - Prof. Robert Schwartz, MD (USA) CEO: Yan Valle (Canada) |
| Description of the membership of the organization, indicating the total number of members: |
VR Foundation does not have formal membership requirements. |
Quadrennial report due? Read more on our updated page.
Questions on applications, reports, or other inquiries
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